About the Work

Advancing Care for Children with Congenital Heart Disease Worldwide

The Global CHD Alliance is dedicated to transforming care for individuals living with Congenital Heart Disease (CHD). Our mission focuses on improving early diagnosis, ensuring access to quality treatment, and providing lifelong support—particularly in low- and middle-income countries where the need is greatest.

1 in 100
Children born globally are affected by Congenital Heart Disease
4
Core areas where we drive meaningful, lasting change
Multi
Stakeholder collaboration across professionals, researchers & families
LMICs
Focused on low- and middle-income countries where gaps are greatest

Understanding the Challenge

Congenital Heart Disease is present from birth, but access to timely diagnosis and treatment remains limited in many parts of the world.

Limited Early Screening

Early screening is not routinely available in many regions, leading to undetected cases that worsen over time without intervention.

Low Awareness Among Families

Families often lack the knowledge to recognize warning signs, resulting in delayed medical consultation and avoidable complications.

Limited Cardiac Centres

Specialized cardiac centres are concentrated in urban areas, leaving rural and remote populations without access to essential care.

Financial Barriers

Financial constraints delay or prevent treatment for millions of children, creating inequitable outcomes based solely on economic status.

Care Gap Overview

Early Screening
28%
Treatment Access
35%
Specialist Availability
22%
Long-Term Follow-up
19%
Family Education
31%
The Global CHD Alliance works to address these gaps through collaboration, education, and system-level change.

A Collaborative Platform for Better Outcomes

The Alliance works to address these gaps through a structured and collaborative approach. We bring together diverse stakeholders united by a single goal: improving outcomes for every individual with Congenital Heart Disease.

Healthcare Professionals Patient Advocacy Groups Researchers Industry Partners Caregivers & Families

"We focus on building sustainable systems that improve care for every child with CHD — worldwide."

Global CHD Alliance Mission

Four Pillars of Our Work

Our work spans access, education, advocacy, and long-term care — creating a complete ecosystem of support for CHD.

01

Access to Care

We aim to improve early diagnosis and ensure that children have access to appropriate treatment, regardless of their location or financial background.

  • Promoting early screening and detection
  • Strengthening referral pathways
  • Supporting development of cardiac care services
  • Encouraging equitable healthcare access
02

Lifelong Care

CHD requires ongoing management beyond childhood. We focus on continuous care and meaningful quality of life throughout every stage.

  • Continuous follow-up and monitoring
  • Transition from pediatric to adult services
  • Management of long-term complications
  • Supporting quality of life at all ages
03

Advocacy

We work with stakeholders to increase awareness and influence policy, with the goal of improving funding and support for congenital cardiac care.

  • Engaging with policymakers and institutions
  • Promoting CHD in public health priorities
  • Supporting sustainable financing models
  • Building a unified voice for CHD care
04

Training & Capacity Building

We conduct training programs for healthcare professionals and educational sessions for parents and caregivers to strengthen care at every level.

  • Clinical knowledge and practical skills
  • Nutrition and growth monitoring
  • Vaccination and preventive care
  • Mental health and emotional support

Supporting Families & Caregivers

CHD impacts not only the patient but also the entire family. We work to support families with clear information, emotional support, and practical guidance for daily care.

View Our Programs →

Practical Information

Providing clear and accessible information to help caregivers understand daily care needs and manage confidently.

Emotional Support

Addressing the psychological challenges that come with caring for a child with a heart condition.

Early Recognition

Helping families identify warning signs early and know when to seek timely medical consultation.

Building Confidence

Empowering caregivers to make informed decisions and promote their child's wellbeing at home.

Every Individual with CHD Deserves Access to Care — At Every Stage of Life

Our objective is to create a system where individuals with CHD receive timely, consistent, and quality care throughout their lives.

Every child is diagnosed early

Every patient has access to treatment

Care continues into adulthood

Families are informed and supported

Join the Initiative →